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Why Carers Week is important to me

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Head and shoulders view of a lady with dark, bobbed hair, and wearing a flowered dress and green lanyard.

In Carers Week, Defra group Senior Security Advisor Hannah John reflects on how she balances a fast-paced career with being a mother and a carer.

When people ask me what I do, I often say I have three jobs – I’m a civil servant, a mother, and a pancreas! It’s the last one of those that I’m focusing on with this Blog, in terms of my role caring for my youngest daughter, who was diagnosed as Type 1 Diabetic, aged five, in 2015.

This means that her pancreas cannot produce the insulin hormone needed to process glucose, which will be fatal unless alternative insulin is provided, either via injections or an insulin pump.

At the time she was diagnosed, I was the Head of Security Policy and Awareness at the Department for Work & Pensions, leading a team of around 30, super-ambitious (having just been accepted for the High Potential Future Leaders scheme), and with my sights firmly set on joining the Senior Civil Service before long.

Becoming a carer, and shortly afterwards separating from my husband to become a single parent to my two young girls, meant I quickly had to adjust my priorities. Of course, my first priority was to support her, and to increase my own understanding of how to manage the condition, so I did a lot of research, and learned how to count the carbohydrates in her food to calculate her insulin doses, and to support her school to do the same. Unfortunately, blood sugar is not only impacted by food, but also by exercise, hormones, the weather and adrenaline so it can be quite tricky to manage!

A long list of challenges to overcome

Those first few years as a carer were very difficult. For me, the main challenges were:

  • Trusting other people to care properly for your child whilst you are trying to focus on work; and dealing with interruptions to work when school needed help.
  • Feeling alone / burdened with the relentlessness of managing the condition, and that nobody else understands or can help.
  • The huge weight of responsibility to keep my child alive and reduce the likelihood of a long list of horrible future potential complications/side-effects (infertility, limb amputation, kidney failure).
  • Endless battles to secure appropriate care & funding - with school (to ensure she was kept safe and not excluded from activities and trips), and with hospital (to secure funding and navigate waiting lists for continuous glucose sensors & insulin pump).
  • Worrying that work is suffering or that you are perceived by colleagues / manager as not doing your fair share or being given special treatment, leading to then over-compensating by taking too much on.
  • Not looking after yourself and your mental and physical health needs, leading to stress, exhaustion and burn-out.

And then Covid raised the bar even further

Covid was an especially scary time, with her in the “vulnerable” category, and my sudden realisation that if anything happened to me, nobody would know how to look after her. I wrote a 10-page document on “how to keep my child alive”, giving all the instructions, phone numbers, settings that I could think of, and sent it to my parents and her dad.

With extra time at home, and the transition to secondary school looming, I gradually began encouraging her to take more responsibility for managing her condition herself. Combined with new hybrid closed loop insulin pump technology, this helped to reduce the pressure (and reliance) on me and, once she was settled in Year 7, enabled me to focus a bit more on myself and my career aspirations again.

A huge support has been the T1D parent community, which I discovered via Facebook, and since 2019 I have been organising a group of around 40 T1D families to meet up at a caravan park in the Cotswolds once a year. My daughter and I had never met anyone else with T1D before this, so it was a revelation, and also a lovely way for both of us to make friends that “got it.”

Blue and white logo displaying the words Carers week, 5 to 11 June 2023,

Choosing the right employer is so important

I did my research before joining Defra, after finally securing promotion to the Senior Civil Service in October 2022. I knew it had a reputation for being a flexible and caring department, which I’m pleased to say has proven to be the case. I have felt able to provide her with the support she needs, to take time out to monitor her blood sugar levels, speak to her school and attend her medical appointments.

I know I will continue to need that support as my caring responsibilities grow to include my ageing parents and supporting my father through cancer treatment.  That’s why I am keen, through this blog, through my leadership of the Defra group security function, and through my involvement with the DDTS women’s network, to support other carers to feel seen, recognised and supported.

Reflecting on the past eight years as a carer, my key takeaways/learnings would be:

  • Be clear with your line manager and colleagues about what support you need to be able to do your job effectively (consider setting this out in a Carer’s Passport).
  • Be open with colleagues and line managers about the challenges of being a carer so that they can (hopefully) be understanding and supportive.
  • Ask for help if things get too much, either at work or at home or both (for example there are great ‘wellbeing’ resources available on the Defra intranet).
  • Reach out to support networks within and outside of work.
  • Make sure you take some time for you.
  • Be proud of your role as a carer – you may discover hidden reservoirs of strength and compassion you didn’t know you had.

Hannah John is Senior Security Advisor for the Defra group of organisations. If you are, or have been, a carer, why not share your experiences by leaving Hannah a comment.

Carers Week is an annual campaign to raise awareness of caring, and to help people who don't think of themselves as having caring responsibilities to identify as carers and access much-needed support.

Carers Week 2023 takes place from 5-11 June, with charities, organisations and individuals getting together to show support for the millions of unpaid carers in the UK - and to spread the word about the challenges they face throughout the year and what needs to be done to improve their daily lives.

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1 comment

  1. Comment by Peter Okereke posted on

    Wow, I'm really touched from reading this <a href="">blog post.</a>
    Hi Hannah, I just want to say you've really been through a lot! I am sorry to hear of your daughter's medical condition. I hope she gets the best care there is available.
    I have been a carer before, about 3 years ago and the whole experience was really different from what I thought, and it made me treat carers with the respect they deserve. Learning of your challenges and how you emerged stronger from them as a mother and civil servant is really humbling. Thank you for this.